We are deeply saddened by the passing of Jackie, a beloved warrior in our epilepsy community.
Her family has shared these words in memory of her:
“Jackie was bigger than life. From the moment she was born, she defied every odd placed before her, refusing to let epilepsy define her. She was a fighter, a warrior, and an inspiration to all who knew her. Her strength, her spirit, and her love will forever live on in our hearts.
Though she is no longer physically with us, her impact remains. In her honor, we hope that the donation of her tissue will help researchers better understand SCN8A epilepsy—bringing them one step closer to finding a cure. Jackie’s fight does not end here, and neither does ours.
As a family, we will continue to advocate, to push for answers, and to ensure that her legacy brings hope to others. Jackie’s life was a beacon of resilience, and we will carry that light forward—always. #JackieForever11”
The Epilepsy Foundation Los Angeles stands with Jackie’s family in their commitment to advocacy and research. Jackie’s legacy will continue to inspire the fight to end epilepsy. Our hearts are with all who loved her. 💜
We are deeply saddened by the passing of Jackie, a beloved warrior in our epilepsy community.
Her family has shared these words in memory of her:
“Jackie was bigger than life. From the moment she was born, she defied every odd placed before her, refusing to let epilepsy define her. She was a fighter, a warrior, and an inspiration to all who knew her. Her strength, her spirit, and her love will forever live on in our hearts.
Though she is no longer physically with us, her impact remains. In her honor, we hope that the donation of her tissue will help researchers better understand SCN8A epilepsy—bringing them one step closer to finding a cure. Jackie’s fight does not end here, and neither does ours.
As a family, we will continue to advocate, to push for answers, and to ensure that her legacy brings hope to others. Jackie’s life was a beacon of resilience, and we will carry that light forward—always. #JackieForever11”
The Epilepsy Foundation Los Angeles stands with Jackie’s family in their commitment to advocacy and research. Jackie’s legacy will continue to inspire the fight to end epilepsy. Our hearts are with all who loved her. 💜
🌸 Hello, Spring! 🌷What are you most excited about this spring? Share your thoughts with us! ☀️💜
🌸 Hello, Spring! 🌷What are you most excited about this spring? Share your thoughts with us! ☀️💜
Mark your calendars for March 26, 2025—Purple Day! Let’s unite to recognize the strength of the epilepsy community and harness the Power in Purple to inspire change. Together, we can turn awareness into action and strengthen support for everyone impacted by epilepsy. Learn more: epilepsy.com/purpleday #PowerInPurple #PurpleDay
Mark your calendars for March 26, 2025—Purple Day! Let’s unite to recognize the strength of the epilepsy community and harness the Power in Purple to inspire change. Together, we can turn awareness into action and strengthen support for everyone impacted by epilepsy. Learn more: epilepsy.com/purpleday #PowerInPurple #PurpleDay
Our amazing EFLA teens, Drew and Selma, met in Washington, DC, at Teens Speak Up!, a powerful advocacy program that brings together teens with epilepsy and their parents from across the country. They joined forces to raise their voices, share their stories, and advocate for policies that support the epilepsy community.
We’re so proud of their dedication to making a difference! Thank you for supporting those living with epilepsy. 💜
Our amazing EFLA teens, Drew and Selma, met in Washington, DC, at Teens Speak Up!, a powerful advocacy program that brings together teens with epilepsy and their parents from across the country. They joined forces to raise their voices, share their stories, and advocate for policies that support the epilepsy community.
We’re so proud of their dedication to making a difference! Thank you for supporting those living with epilepsy. 💜
➡️ Join us for a day of giving back at @kendrascott on March 29! 💜🌟 Can’t make it in person? No worries! You can still show your support online from March 28-30 using code GIVEBACK-IUZVY at KendraScott.com.
Every purchase helps us support local epilepsy programs and awareness. Thank you for making a difference! 💜
➡️ Join us for a day of giving back at @kendrascott on March 29! 💜🌟 Can’t make it in person? No worries! You can still show your support online from March 28-30 using code GIVEBACK-IUZVY at KendraScott.com.
Every purchase helps us support local epilepsy programs and awareness. Thank you for making a difference! 💜
Today is #WorldSleepDay and it`s #SleepAwarenessWeek. For people with epilepsy, getting enough rest can help manage seizure frequency and improve overall well-being. Quality sleep plays a vital role in managing epilepsy and seizures. Prioritize your sleep hygiene, establish a relaxing bedtime routine, and create a restful sleep environment. To learn more about sleep and epilepsy, visit https://www.epilepsy.com/complications-risks/sleep or the link in bio.
Today is #WorldSleepDay and it`s #SleepAwarenessWeek. For people with epilepsy, getting enough rest can help manage seizure frequency and improve overall well-being. Quality sleep plays a vital role in managing epilepsy and seizures. Prioritize your sleep hygiene, establish a relaxing bedtime routine, and create a restful sleep environment. To learn more about sleep and epilepsy, visit https://www.epilepsy.com/complications-risks/sleep or the link in bio.
March 10-16 is Brain Awareness Week! Let`s learn about the brain! 🧠💜
It is amazing what our brains can do. Use our brain facts to share your story with epilepsy and spread epilepsy awareness!
March 10-16 is Brain Awareness Week! Let`s learn about the brain! 🧠💜
It is amazing what our brains can do. Use our brain facts to share your story with epilepsy and spread epilepsy awareness!
Celebrating International Women’s Day! 💜
Today, we honor the strength, resilience, and achievements of women everywhere, especially those in the epilepsy community. From advocates and caregivers to researchers and warriors living with epilepsy, your impact is immeasurable.
Tag a woman who inspires you! #IWD2025 #EpilepsyStrong #EpilepsyLosAngeles
Celebrating International Women’s Day! 💜
Today, we honor the strength, resilience, and achievements of women everywhere, especially those in the epilepsy community. From advocates and caregivers to researchers and warriors living with epilepsy, your impact is immeasurable.
Tag a woman who inspires you! #IWD2025 #EpilepsyStrong #EpilepsyLosAngeles
The Epilepsy Foundation Los Angeles team, along with our board of directors, shares our deep sadness over the devastation caused by the January 2025 fires…
Read MoreSenate Bill 357, authored by Sen. Anthony Portantino, D-Burbank, would have finally ended California’s shameful decades-old policy…
Read MoreSenate Bill 357 has passed the Assembly floor and will continue to move forward through the legislative process.
Read More