You are not alone. Being told you or a loved one has “epilepsy” or “a seizure disorder” may be quite a surprise. You may feel confused and concerned. You may even be in denial. We’re sure you have more questions than answers. That is why we’re here to link you to information, refer you to care and resources, and connect you to others who understand and can help.
Parents of Children with Epilepsy
Caring for your child can be a challenge as you learn a whole new “language” while simultaneously trying to navigate the therapy world and/or the healthcare and education systems in search of help and answers. We want to do our best to partner with you through our Helpline, referral to care, supportive care programs, epilepsy education in school, and online information.
As your child’s best advocate, we know you intend to leave no stone unturned as you ceaselessly pursue the best treatment option(s) for your child. In your quest to better document, manage, and care for your child’s epilepsy, we have provided information, tools and forms to help you ensure your child receives the proper epilepsy diagnosis and can better manage your child’s epilepsy.
Adults with Epilepsy
Being independent and free of seizures is something all adults wish for and strive for. For some it is a reality but for others it still is a dream and a future yet to be had. Regardless of where you stand on the spectrum of epilepsies, it is important to learn more about your epilepsy and how it affects you and those around you.
We are providing information so you may be proactive and empower yourself on this journey. Always remember that you are not alone.
We want healthcare professionals in our region to have access to the epilepsy information, tools and forms, and other resources that we make available to your patients and their families.
Schools and School Personnel
We encourage school personnel to:
- Make sure each student with seizures has a Seizure Action Plan for your reference and use while at school
- Consider using a Seizure Observation Record so all school personnel are reporting seizures the same way
- Ask the parent (and doctor) to complete a questionnaire about the student with seizures
- If the student has a prescription for an emergency rescue medication, ensure that the Seizure Action plan includes the Emergency Care Instructions
- Train volunteer(s) at school to recognize seizures, give accurate seizure first aid and to administer emergency rescue medications.
- Contact us if you would like us to conduct a Training at your school.