Parent advocates, Dara and Juno Pierre-Louis, joined our End Epilepsy Executive Director, Susan Pietsch-Escueta, for an interview on 100.3 The Sound’s “5900 Wilshire”. On-air personality, Tina Mastramico, aired the segment this past Sunday, October 15, 2017.
Dara and Juno, members of Team Nehe (who are attending the Walk to End Epilepsy on November 5 at the Rose Bowl), shared their roller coaster of a journey to find the right therapy to manage their son’s seizures. Nearly two years later and their son, Nehe, is seizure free — thanks to a dietary therapy for epilepsy. For more information about dietary therapies, call us at 800.564.0445 or visit friends of our organization, The Charlie Foundation for Ketogenic Therapies.
Executive Director, Susan, spoke about how common epilepsy is (1 in 26 will develop epilepsy in his or her lifetime) and how the Walk to End Epilepsy empowers our community to speak up and make a difference.
Listen to the full program here or below. Please also turn your radio dial to 100.3 FM to stay tuned for PSAs about epilepsy and the Walk.
To learn more about the Walk to End Epilepsy on Sunday, November 5, 2017 at the Rose Bowl, Pasadena, please visit WalktoEndEpilepsy.org.
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