Media Room
Thank you for your interest in writing about the epilepsies and the Epilepsy Foundation of Greater Los Angeles. We want you to have easy access to information about our organization and about the epilepsies. This page provides links to our media stories, videos, photo albums and Enews.
The Epilepsy Foundation of Greater Los Angeles leads the fight to END EPILEPSY. And we participate in the Epilepsy Foundation’s nationwide mission to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives stop seizures and early death, find a cure and overcome the challenges created by epilepsy.
The Epilepsy Foundation of Greater Los Angeles is leading the fight to END EPILEPSY through care, advocacy, research and education. We offer a range of services and programs to help, support, care and advocate for, and empower those who are affected by the epilepsies and their caregivers. We educate the general public about epilepsy and how to recognize seizures and administer first aid. We support research for cures and the training and work of specialists in our region in order to improve access to specialty epilepsy care and increase epilepsy research in our region — giving people with epilepsy and their loved ones greater access to care today and greater hope for cures in the future.
We invite everyone to join the fight to END EPILEPSY at www.EndEpilepsy.org. You can contact us at Help@EndEpilepsy.org and 800.564.0445. The Epilepsy Foundation of Greater Los Angeles is a 501c3 nonprofit organization. Our tax ID is 95-2046033.
The Epilepsy Foundation of Greater Los Angeles is an ally with and advocates for individuals and families affected by epilepsy/seizure disorders. Our primary area of service includes the Counties of Los Angeles (9.95 million), Orange (3.0 million), San Bernardino (2.0 million) and Ventura (0.8 million). The combined population of our territory is over 15.75 million and at least 1% or about 160,000 people have epilepsy. However, many more are significantly impacted by epilepsy in their daily lives when you include family members, caregivers, and friends.
The Epilepsy Foundation of Greater Los Angeles has been in existence for over 55 years, but under different names. We are the only non-profit, 501(c)(3) charitable organization dedicated solely to serving people affected by epilepsy throughout this entire region. We are an independent non-profit organization that chooses to affiliate with the national Epilepsy Foundation headquartered in Landover, Maryland.
Rebekkah Halliwell
Executive Director
Epilepsy Foundation of Greater Los Angeles
310.670.2870 (office)
RHalliwell@EndEpilepsy.org
Definition and characteristics of the epilepsies
Diagnosis and treatment of the epilepsies
Numbers of people affected by epilepsy
Epilepsy research
Impact of the epilepsies
You can use these quotes or contact help@endepilepsy.org to request other quotes.
“I am often struck with how important this cause is. It is a life threatening cause that demands the activism of everyone — and especially those with epilepsy and those who care for them.”
-Steven Baum, President, Board of Trustees, Epilepsy Foundation of Greater Los Angeles“My son, Sebastian, has a severe form of childhood epilepsy. He is the bravest person I know. He inspires me to be part of this fight to End Epilepsy. I know most of my fellow trustees feel the same way. We are all inspired by the brave people with epilepsy whom we know.”
-Steven Baum, President, Board of Trustees, Epilepsy Foundation of Greater Los Angeles
“Time and again I have seen the importance of sharing personal stories of epilepsy. It is critical to End Epilepsy. We will not End Epilepsy if those with epilepsy do not share their stories. Each story is like gold in support of this fight.”
-Susan Pietsch-Escueta, MPH, Executive Director, Epilepsy Foundation of Greater Los Angeles
“Epilepsy is far more common than most people realize. In fact, epilepsy affects more people than cerebral palsy, multiple sclerosis, muscular dystrophy and Parkinson’s disease — combined. Sadly, however, it receives far fewer dollars per patient affected than each of those neurological diseases.”
-Susan Pietsch-Escueta, MPH, Executive Director, Epilepsy Foundation of Greater Los Angeles
“We need awareness that helps the public understand about seizures and epilepsy and their impact on children, adults and families… At the core of what we are doing … is a very real and serious FIGHT.”
-Jeannett, mother of Jilly, LifeRearranged.com
Phrase to use |
Phrase NOT to use |
---|---|
person with epilepsy |
epileptic |
seizure |
fit, spell, attack |
epilepsy is a disease/disorder of the brain |
epilepsy is a psychiatric or mental illness |
person |
patient (and other medical terms) |
Coming soon – other guidelines on writing about persons with disabilities.
The Epilepsy Learning Portal is your one-stop shop to access the Epilepsy Foundation’s online and on-demand trainings about epilepsy and seizures. Here are some of our most popular classes. Feel free to browse our full class catalog. Many classes offer continuing education credits. Review the course descriptions and instructions for more […]
Walk to END EPILEPSY® Goes Virtual on Saturday, November 7, 2020 We held on to hope that we would be able to meet in person for the Walk to END EPILEPSY®, but ultimately, the health and well-being of our community is our utmost priority. Therefore, we have made the tough decision to forego an in-person […]
As many of us are hearing reports of states, counties, and cities throughout the United States beginning to reopen in different phases, you are probably wondering how this effects your local Epilepsy Foundation. We are continuing to operate based on the most recent guidance issued by our public health experts and government officials surrounding the […]
During this time of pandemic, the Epilepsy Foundation Greater Los Angeles is here for you! We want to know how you are doing and what virtual programs might be of interest. Help us help you by completing the online survey below (or click here). Questions? Contact us at help@endepilepsy.org or 310.670.2870. Online Form – […]
Epilepsy Foundation of Greater Los Angeles Postpones its Walk to END EPILEPSY® Planned for March 22 at the Rose Bowl Due to Latest Policy on COVID-19 by State Health Experts and Government Agencies Epilepsy Foundation of Greater Los Angeles is closely monitoring the evolving situation surrounding COVID-19 (coronavirus). In light of the updated policy by […]
It is with great excitement, on the first day of November Epilepsy Awareness Month, that we announce our Walk to End Epilepsy on March 22, 2020 at the Rose Bowl in Pasadena. The Walk to End Epilepsy is a fun-filled community event – with a serious cause – that gives everyone an opportunity to share […]
April 16, 2018
Boston Backwards to End Epilepsy
October 9, 2017
Epilepsy Foundation of Greater Los Angeles Will Host Its 11th Walk to End Epilepsy
March 19, 2015
Epilepsy Summit brings top neurologists to Los Angeles
November 16, 2014
Realm of Caring California hosts clothing drive at 2014 Walk to End Epilepsy
September 5th, 2014
Samsung C&T America joins Fight to End Epilepsy hosts Clothing Drive
November 11th, 2014
Holy Cross School Ventura Hosts Clothing Drive to Support End Epilepsy
October 23rd, 2014
Walk to End Epilepsy Social Media Annoucement